BACK

Announcement of the Next Generation Researcher Network Capacity-Building Seed Funding Scheme 2025

Congratulations to this year’s Lived-Experience Researcher Led award recipient Caroline Walters (Monash University).

With this funding, Caroline will research Meeting the Needs of Mental Health Family Carers through a Family Carer Lived Experience Worker Telephone Support Line alongisde her team: Melissa Petrakis (Monash University), Joanna Tilkeridis (Tandem Carers), Wendy Ayzit (Tandem Carers) and Mary Felton (Tandem Carers).

Receiving support from someone with similar experiences to you has been internationally noted as highly valued by mental health family carers. Peer-to-peer telephone helplines have been established for carers in Australia. An example of this is Tandem Carers’ Support and Referral Line, staffed by advisors with their own lived experience of providing support and care for people with mental health challenges. The service enables family carers to receive general advice, advocacy and information on services to meet needs, from someone who understands their situation. Archival records held by Tandem, show exponential growth in the numbers of calls since being established in 2017. Understanding reasons for accessing the service, the types of help provided, and how a peer led helpline supports family carers will improve service development. This project will explore the benefits and challenges of the helpline for family carers including across diverse communities and locations within Victoria. Through a review of the literature, an analysis of archival records, group and individual interviews with people who have used the support line, the potential of peer-to-peer telephone support in meeting family carer needs can be determined. These lines may be especially beneficial in areas where services are difficult to access.

— ALIVE Forum

The forum offers a place for dialogue and exchange for lived-experience researchers engaged in mental health research.

Membership includes lived-experience researchers in community organisations or governments working on mental health research projects and people with lived-experience who may partner with researchers for co-design or co-production research so that they connect with others.

It’s a supportive forum to share experiences, grow networks, and to talk about skills and training needs that people might benefit from, including building lived-expertise as an evidence base.

Register Now

The ALIVE Lived-Experience Research Collective Forum is a supportive, safe and anonymous space.

We ask you to read the following before posting to the forum:

Getting started

Share ideas, talk about skills that work for lived-experience researchers and participate in research focused conversations within posts and threads.

Our principles for participation

Here are our principles for participation for the ALIVE Lived-Experience Research Collective Forum. This space is created for everyone to feel welcome and safe in their interactions. If you notice that the principles of participation are not being put into practice, please get in touch with us.

Forum FAQs

Here are the principles of participation for the ALIVE Lived-Experience Research Collective – these have been co-created by and for mental health researchers with lived-experience to support safety in online dialogue, cooperative practices and shared agreements. Please get in touch with us at info@alivenetwork.com.au for more information or if see any concerning language or practices you need to discuss.

Read more